Beaumont Hospital has partnered with the Royal College of Surgeons in Ireland to provide a Biobank for the storage of all clinical samples generated by the Irish Kidney Gene Project. The Biobank stores all samples in an anonymized fashion. Only Beaumont Hospital keeps track of the identity of samples. Samples are shared with clinical and investigational labs at the direction of clinical team at Beaumont Hospital.
For the past twelve years the Irish Kidney Gene Project (IKGP) group has been collecting DNA and clinical phenotype data from patients with a family history of kidney disease and patients with unexplained kidney disease. Under the governance of the IKGP/RCSI Biobank and Registry, facilities are available for biobanking of DNA of affected individuals and appropriate affected and unaffected family members.
To date, clinical phenotyping and DNA collection has been performed on over 1800 individual patients representing a myriad of clinical conditions. The recruitment rate has increased exponentially since the project began in 2012.
Link: Irish Kidney Gene Project Biobank - Royal College of Surgeons in Ireland (rcsi.com)
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